Yesterday, once again we woke up at the crack of dawn (actually it was still pitch black out) and headed down to Sick Kids for round two of laser treatment on her hemangioma. Last time I fed her a granola bar without thinking and therefore ended up doing the procedure without sedation. She was a … [Read more...]
The Beginning Of The End – part 2
We arrived at the hospital yesterday morning at 7:30am for Eva's first round of sedated laser on her hemangioma. We checked in and were taken into a prep room. The nurse came to do the paperwork and take Eva's vitals. The plan was then to give her an oral sedative and then to apply a topical … [Read more...]
The Beginning Of The End – part 1
It is almost 5 years to the day that Eva was rushed to Sick Kids hospital via emergency ambulance. She was in need of an urgent transfusion because her hemangioma was so severely ulcerated and she had bled out profusely. It was her third bleed. We didn't come home for 6 days. Prior to that … [Read more...]
FotoFriday – Four years ago
I was looking through some pics the other day and found a bunch from Eva's first year. In the majority of them her neck is bandaged. This was exactly four years ago today.She was just about to be sedated for an echo cardiogram. Here she is undergoing the procedure. Before you … [Read more...]
Sometimes…being a parent really sucks…
We spent this past weekend away at a hockey tournament at the gorgeous Nottawasaga Inn. There is a play structure just outside the arena that Cuyler and Eva spent some time at. I sat on the grass basking in the hot sun watching them play. A little girl approached Eva and asked what … [Read more...]
Home away from home, no more!
Yesterday we made our way to what was once our home away from home. The Hospital for Sick Children. Sick Kids.We have spent countless days there. We have traveled there by van, train and ambulance. I have cried a hundred tears there. She has seen countless doctors for … [Read more...]
FotoFriday – CindyLou Who
Who was no more than 2...I love this pic of Eva. It was taken December 2008 - 1 month before she turned 2 and it was the first time I got piggies in her hair. I can't believe how much her hemangioma has cleared since then! … [Read more...]
Hockey Mom
That's what I call myself at times. Hockey Mom. But in all honesty I really don't think I am. Well...not a good one anyways. I rarely go to Cam's games, not because I don't want to. But because I can't. Sean coaches and is on the bench and that would leave me in the … [Read more...]
The Book
This is a follow up to the post I wrote last week about Eva and her hemangioma.I spent Friday night putting a little awareness book together for her to take to school.I meant to scan it but forgot to before I laminated it so please bear with me and the awful photographs I took.A few photos, some … [Read more...]
The Point of View Changes Everything
This post goes along with this one I wrote about Eva and her hemangioma.Most adults who meet Eva don't even notice her "manny".All kids do.She's at their level and they see more of it from their point of view.Case in point: Cuyler's new EA had no idea Eva had a hemangioma and she see's … [Read more...]