Just over two years ago Cuyler came down with a virus. It was nasty.
He felt warm just before we went out trick or treating and was in full blown fever mode when we got home. It would be about 2 weeks before he was back to normal. Which in the grand scheme of things isn’t terribly long.
My kid could not walk. His communication deficit made trying to figure out what was wrong even more difficult. He didn’t seem in pain so we didn’t know if he was hurting. He couldn’t tell us where it hurt. What kind of hurt it was…we didn’t know why he couldn’t walk. I was terrified.
We took him to emerg. They did a series of neuro tests – as best they could, he wasn’t thrilled to be there and was less than cooperative.
It was determined that whatever virus he had, had made its way into his leg muscles. We were to keep pumping the Advil and he’d be fine in a few days. It was torture for all of us. Getting meds into him was no easy task. I had tried meltaways, chewables, and about 4 different flavoured liquids. None of which he took willingly.
It took almost 2 weeks before he was walking properly.
Monday morning we woke up to his wimpering “Mom. Dad. Help me.”
Sean went to check him. He was on the toilet. He told Sean he couldn’t walk.
“How did you get to the bathroom?”
Monday he spent the day on the couch or in bed. We had to carry him to the toilet, to his bedroom. We weren’t too worried this time. We’d been through it before.
This time he told us “My calves are sore. I can’t walk because it hurts too much”
It was a much different experience than the last time.
He had to put a mask on because of his cough. He let them put the bracelet on. He answered their questions. Told them he had a fever and that his calves were sore and he couldn’t walk.
Waited patiently after triage
Hopped up on the bed and waited to be seen.
When the dr came in (our family dr – thank god for a friendly, familiar face!) Cuyler cooperated, let him do the exam, answered questions. Asked a few of his own…
So often with kids like Cuy who have communication issues we have to rely on our observations of them – and our instincts – to make sure everything is as it should be.
I remember back to 2 yrs ago when everything about his illness was difficult. From taking his temperature, to giving him meds, to trying to figure out how he was feeling.
This time? The meds went down easy. The thermometer was going in his ear on a regular basis. He was able to tell us “I’m ok. I’m just really tired”
I don’t take any of that for granted and am grateful he has gotten to this point.
We don’t see progress every day. Or every week. Or every month.
But the big picture shows us that it’s there. It’s totally there.