Wow, this is hard. I know my mom is sick because of the Interferon treatment but, as a wise mom at hockey said to me, "suffering is suffering". It’s true. No matter the reason, when someone you love is in pain it hurts.
My mom has been experiencing extreme side effects from her treatment the last few days. The worst are the severe headaches, like migraines, which cause nausea, vomiting, and pain beyond belief. The pain is so bad that even a slight movement causes her head and stomach to lurch. Lying flat offers no relief and sleep is impossible. How does she face another 2 weeks of this? Hopefully the side effects will lessen and we plan on talking to the doctor about getting some migraine meds prescribed to see if that helps.
The good news is she is half way there. Her 20 days of intensive Interferon treatment are now down to 10. And in true form she has a list of suggestions and ideas to help the hospital, the staff, and other patients improve access to information, processes, and support for the future. My mom was a nurse for 40 years and spent the latter part of her career helping hospitals improve just this sort of thing. Now, as a patient she has an inside view and wants to help.
Thanks again to everyone for your support! Please continue to send your positive vibes.