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You are here: Home / Life / Health & Fitness / The Beginning Of The End – part 1

The Beginning Of The End – part 1

July 23, 2012 by Christine

It is almost 5 years to the day that Eva was rushed to Sick Kids hospital via emergency ambulance. She was in need of an urgent transfusion because her hemangioma was so severely ulcerated and she had bled out profusely. It was her third bleed. We didn’t come home for 6 days.
hospcrb.jpg

Prior to that bleed we had been dealing with the ulcers for several months. We became wound care specialists. Learning the proper way to irrigate the wound and re-dress it. We had daily home care nursing and a weekly medical supply delivery to our home.
Her neck had a dressing on it for 8 months:
dresing.jpgUnder that dressing was a persistent wound. I have offered a photo of it here. Please note it is graphic and may bother some. But that was my gorgeous girl’s life for her first year.

She became a patient at Sick Kids when she was 6 weeks old because of the location on her neck. It ulcerated when she was 4 months old and didn’t heal until she was 12 months old.
While it was ulcerated we were seen twice a week.
After the ulcers were healed we were followed monthly, then every six weeks, then every six months then annually.
She has been involved with dermatology, ENT, plastics, cardiology and dentistry at Sick Kids.

Five years ago I never thought we’d turn a corner with those damn ulcers. For that time, our life revolved around her care.
Five years ago seems like a lifetime ago.

Today we woke up before the crack of dawn and headed to Sick Kids for what will be the first stage of the end of her hemangioma.
For some strange reason I am mixed about it.
It has been a part of her for her entire life.
We took one last photo of it last night before going to bed.
It will be another long road, but won’t look like this again.
byemanny.JPG

Stay tuned for the update tomorrow!!

Filed Under: Health & Fitness Tagged With: birthmark, hemangioma, Sick Kids, ulcers

Comments

  1. Theresa says

    July 24, 2012 at 9:58 pm

    Wow… made me tear up. What a beautiful girl from baby to now. What a proud moment for her!!! WTG EVA!!! You have a huge audience cheering you on!!

  2. Kim says

    July 23, 2012 at 11:52 am

    sniff sniff. 🙂

  3. Sara says

    July 23, 2012 at 11:20 am

    She’s so pretty with or without Manny!!! 🙂

  4. Keeley says

    July 23, 2012 at 11:06 am

    Good luck with everything!!! xox

  5. Tracey says

    July 23, 2012 at 10:48 am

    I’m excited for her! And for you!! Can’t wait to hear about part II…

  6. Sara says

    July 23, 2012 at 9:04 am

    Whoa!!!!! Awesome! I can’t wait to hear how it all went! Go Eva!

  7. Caitlin says

    July 23, 2012 at 6:19 am

    Wow Christine, I never knew exactly what everyone went through. You are all strong and amazing people. Keep your head up!

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