Written By Christine
Christine is a (mostly) stay at home mum to 2 boys and a little girl. Join her as she navigates life raising a special needs child and all of the trials and triumphs that she and her family encounter on their journey.Read Her Blog "Sometimes Holland Feels Like Hell"
Yesterday we made our way to what was once our home away from home.
The Hospital for Sick Children.
We have spent countless days there. We have traveled there by van, train and ambulance.
I have cried a hundred tears there. She has seen countless doctors for countless reasons/treatments/procedures. She’s had several sleepovers there. She’s got her bravery beads.
There was a time when we couldn’t imagine life without bi-weekly and weekly visits. The day we were told we could come back in a month was the day we felt like we got a little bit of our life back. Then after a few months we were told 6 months. Then *gasp* one year!
But … wouldn’t they miss her…?
So now we go back annually (once a year to dermatology and plastics).
This is a peek into our day at Sick Kids.
We get the princess and her brothers up early.
And then we wait. Daddy works. And Eva plays. Thank you iTouch.
And we wait…
We’ve been waiting just about 2 hours at this point. My girl was such a patient patient – ha!
We discuss options and we come to a magnificent conclusion.
The specific surgery she will have will give her the very best long term results the later we do it. All he wants to do is repair the 2 small holes in her neck. For the best results we need to let her skin grow as much as possible. We need to let the redundant skin and tissue retract as much as it naturally will.
So we will wait.
We will let nature work its magic on her before the surgeon works his.
We greatly appreciated the fact that he said he would operate anytime the scarring became a social issue. He doesn’t want her emotionally affected by it if kids make fun of her or if she becomes socially uncomfortable because of it. It can be done anytime – but best results will come from waiting as long as we can. We appreciated that consideration because that is always a concern of ours – the psycho-social impact this could have on our girl. So we’ll go with our gut. We’ll wait until we feel the time is right.
They also told us something we had never heard before…
“We’ll see you in 2 years.”