Do it yourself.
I learned that a very long time ago.
It was a lesson learned very early on with Cuyler. I had to fight and push and pursue early intervention. I had to fight and push and pursue the diagnosis.
Many decisions we have made for him came by way of us fighting, pushing and pursuing.
Many decisions we have made for him came by way of us fighting, pushing and pursuing.
The school has been extremely accommodating and we have loved it there. Well, up until this happened…
Unfortunately where we live Cuyler doesn’t qualify for any services through the school board – no speech, no physical or occupational therapy which kind of blows because anything we need for him has been done out of pocket.
Last year, towards the end of school, he was using a ball chair in class. 
The school only has one and I thought he would benefit from it. It gives his body the opportunity for the fluid movement that he needs to allow his brain to focus.
While in a meeting about his IEP last week I requested he use the chair again but he is unable to. The school would look into getting one for him but not to count on it. She was going to ask the OT that consults to the school and she would see her at the end of the month. I thought that was too long to wait for something we might not even get.
So there was my challenge. I was going to get him his chair.
If he depended on the school for one – who knows if he’d get one.
If he depends on his Mom for one – he’s gonna get it.
Friday afternoon emailed my awesome family doctor letting him know what I was looking for, why Cuyler needed it and if he could refer me somewhere I could look further into it.
Yesterday I received a phone call letting me now that the prescription for Cuyler’s chair was ready to be picked up. See? Awesome.
I picked it up, drove it over to the school and asked to get the therapeutic ball chair rolling on this so he can have it in place asap. It was faxed out and I hope to hear something very soon about when it will arrive. I am going to assume that there is red-tape and procedures in place about getting it purchased and in the school.
I’ll just keep being the squeaky wheel to get my boy what he needs.
Schools love that, right?
Good for you. And boo to the system. I’ve seen a kid with MS (also deaf) who had to wait months for his special chair to come in, months! And his mom is a fierce advocate like you are. Red Tape….Red Tape (said like Red Rum).
What’s sad is the kids who’s parents don’t know how to advocate for them don’t get what they need.
Awesome. Seriously, ALL KINDS of awesome! Keep on squeaking, lady!
Way to go Christine! We as parents are going to be the only and best advocates for our children to get them what they need. If we won’t fight for them who will?
Squeak, squeak. You go, girl!
you are the BEST!!!!!!!!!
Squeak on, mama… a boy needs to be able to depend on his mother, right? You’re doing it all, lady. Awesome, you!! xox