Written By Christine
Christine is a (mostly) stay at home mum to 2 boys and a little girl. Join her as she navigates life raising a special needs child and all of the trials and triumphs that she and her family encounter on their journey.Read Her Blog "Sometimes Holland Feels Like Hell"
This past Saturday we took Cuyler to get his back-to-school hair cut. As I stood watching him smile at himself in the mirror, with his self affirmations as to how brave he is, I could not help but think back to when I sat in the exact chair with him on my lap flailing and screaming, out of his mind. Out of control.
But not now. Nope. He is incredibly brave. And he knows it. He says it about 20 times throughout the hair cut. “I’m so brave” ”I’m a brave boy Mom!”
Sometimes his nails would get so long they’d curl over the end of his toes. It often wasn’t safe to cut them. Sometimes it felt abusive trying to pin him down to do it – so we didn’t.
His teeth? Well I worried about them constantly. I don’t have the best teeth teeth. Cam has my teeth. I couldn’t even tell what kind of teeth Cuyler had. All I knew was that he ground the shit out of them until they wouldn’t grind. They would actually squeak because he wore the enamel down flat. We couldn’t get him to a dentist and brushing his teeth was a joke. It was fine as long as we were prepared for him to gag and possibly vomit…other than that – wasn’t happening.
This boy keeps filling my bucket of hope for him. He has taught me to take nothing for granted – the simple task of clipping his toenails or cutting his hair or cleaning his teeth are now reminders of how far he has come and how far he can go.
The things that once posed the greatest challenges for him, he has overcome.
Progress happens every day. Every day I see it with my own eyes.